Palliative Care, Good Death, and Social Security System: Concept Clarification and Theoretical Analysis
Several important social issues in an aging society, such as end-of-life suffering, impoverishment due to illness, and the optimization of medical resource allocation, can be mitigated through the establishment of palliative care systems. Palliative care is a holistic medical and nursing approach that respects the autonomy of end-of-life patients, aims to alleviate end-of-life suffering, improves the quality of life for patients, and provides relevant social support for patients and their families. The corresponding social security arrangements can effectively promote the development of palliative care, reduce the likelihood of impoverishment due to illness, and optimize medical resource allocation. This study focuses on the concept with respect to applicability-related conceptual issues, including individual utility, decision-making time, and medical costs. It clarifies and systematically aligns the relevant concepts of palliative care in medical practice based on the assumptions concerning individual utility embedded in theoretical models and analyzes the impact of different care models on patient utility. On this basis, a simplified individual end-of-life medical decision-making model is constructed to explore patients' choices in end-of-life medical decisions and the corresponding social cost-benefit analysis. It demonstrates that providing palliative care options offers potential for improving both individual and societal welfare and proposes policy-based insurance as a financing mechanism to achieve a Pareto improvement at the level of the social security system. Additionally, this study further clarifies the boundaries of palliative care within the social security framework, providing an analytical framework for facilitating preference-consistent choices by patients and their families, as well as the normative implementation of related systems.
Affairs, J. (1999). Medical futility in end-of-life care: Report of the Council on Ethical and Judicial Affairs. JAMA: The Journal of the American Medical Association, 281(10), 937–941.
Anderson, R. J., Bloch, S., Armstrong, M., & Stone, P. C. (2019). Communication between healthcare professionals and relatives of patients approaching the end-of-life: A systematic review of qualitative evidence. Palliative Medicine, 33(8), 926–941.
Baer, W. M., & Hanson, L. C. (2000). Families' perception of the added value of hospice in the nursing home. Journal of the American Geriatrics Society, 48(8), 879–882.
Bai, Q. (2013). Palliative care [舒缓疗护]. People's Medical Publishing House[人民卫生出版社].
Barnato, A. E., McClellan, M. B., Kagay, C. R., & Garber, A. M. (2004). Trends in inpatient treatment intensity among Medicare beneficiaries at the end of life. Health Services Research, 39(2), 363–375.
Bekelman, D. B., Hutt, E., Masoudi, F. A., Kutner, J. S., & Rumsfeld, J. S. (2008). Defining the role of palliative care in older adults with heart failure. International Journal of Cardiology, 125(2), 183–190.
Billings, J. A. (1998). What is palliative care? Journal of Palliative Medicine, 1(1), 73–81.
Casarett, D. J. (2011). Rethinking hospice eligibility criteria. JAMA, 305(10), 1031–1032.
Chen, F., & Li, W. (2004). End-of-life care and the dawn of euthanasia [临终关怀与安乐死曙光]. China Workers Publishing House [中国工人出版社].
Chen, L., & Jiang, H. (2013). End-of-life poverty, quality of life, and strategies for developing end-of-life care for the elderly [ 临终贫困、生命质量与老年临终关怀发展策略], Journal of the National Academy of Governance [国家行政学院学报], (4), 98–103.
Cramp, F., & Bennett, M. I. (2013). Development of a generic working definition of 'supportive care'. BMJ Supportive & Palliative Care, 3(1), 53–60.
Doveson, S., Holm, M., Axelsson, L., Lindqvist, O., & Sandgren, A. (2020). Facing life-prolonging treatment: The perspectives of men with advanced metastatic prostate cancer – An interview study. European Journal of Oncology Nursing, 49, 101859.
Doyle, D. (1993). Palliative medicine--a time for definition? Palliative Medicine, 7(4), 253–255.
Dumanovsky, T., Augustin, R., Rogers, M., Lettang, K., Meier, D. E., & Morrison, R. S. (2016). The growth of palliative care in U.S. hospitals: A status report. Journal of Palliative Medicine, 19(1), 8–15.
El-Jawahri, A., Greer, J. A., & Temel, J. S. (2011). Does palliative care improve outcomes for patients with incurable illness? A review of the evidence. The Journal of Supportive Oncology, 9(3), 87–94.
Emanuel, E. J., & Emanuel, L. L. (1994). The economics of dying. The illusion of cost savings at the end of life. The New England Journal of Medicine, 330(8), 540–544.
Emanuel, E. J., Ash, A., Yu, W., Gazelle, G., Levinsky, N. G., Saynina, O., ... & Moskowitz, M. (2002). Managed care, hospice use, site of death, and medical expenditures in the last year of life. Archives of Internal Medicine, 162(15), 1722.
Fang, E. F., Scheibye-Knudsen, M., Jahn, H. J., Li, J., Ling, L., Guo, H., ... & Ng, T. B. (2015). A research agenda for aging in China in the 21st century. Ageing Research Reviews, 24(Pt B), 197–205.
Fisher, J., Fones, G., Arivalagan, Y., Van Ryneveld, M., Singh, D., & Manby, L. (2024). WHO framework on meaningful engagement: A transformational approach to integrate lived experience in the noncommunicable disease and mental health agenda. PLOS Global Public Health, 4(5), e0002312.
Fox, E. (1997). Predominance of the curative model of medical care. A residual problem. JAMA, 278(9), 761–763.
Fries, J. F., Koop, C. E., Beadle, C. E., Cooper, P. P., England, M. J., Greaves, R. F., ... & Wright, D. (1993). Reducing health care costs by reducing the need and demand for medical services. The Health Project Consortium. The New England Journal of Medicine, 329(5), 321–325.
Ge, Y., Wang, L., Feng, W., & Li, J. (2020). Challenges and strategic choices for healthy aging in China [我国健康老龄化的挑战与策略选择], Management World [管理世界], 36(4), 86–96.
Gillick, M. R. (2013). The critical role of caregivers in achieving patient-centered care. JAMA, 310(6), 575–576.
Goodlin, S. J. (1997). What is palliative care? Hospital Practice (1995), 32(2), 13–16.
Gruber, J., Howard, D. H., Leder-Luis, J., & Mellor, J. (2025). Dying or lying? For-profit hospices and end-of-life care. American Economic Review, 115(1), 263–294.
Haraldstad, K., Wahl, A., Andenæs, R., Andersen, J. R., Andersen, M. H., Beisland, E., ... & Helseth, S. (2019). A systematic review of quality of life research in medicine and health sciences. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 28(10), 2641–2650.
Harris, I., & Murray, S. A. (2013). Can palliative care reduce futile treatment? A systematic review. BMJ Supportive & Palliative Care, 3(4), 389–398.
Hov, L., Synnes, O., & Aarseth, G. (2020). Negotiating the turning point in the transition from curative to palliative treatment: A linguistic analysis of medical records of dying patients. BMC Palliative Care, 19(1), 91.
Hui, D., De La Cruz, M., Mori, M., Parsons, H. A., Kwon, J. H., Torres-Vigil, I., ... & Bruera, E. (2013). Concepts and definitions for "supportive care," "best supportive care," "palliative care," and "hospice care" in the published literature, dictionaries, and textbooks. Supportive Care in Cancer, 21(3), 659–685.
Hui, D., Nooruddin, Z., Didwaniya, N., Dev, R., De La Cruz, M., Kim, S. H., ... & Bruera, E. (2014). Concepts and definitions for "actively dying," "end of life," "terminally ill," "terminal care," and "transition of care": A systematic review. Journal of Pain and Symptom Management, 47(1), 77–89.
Jiang, S., Li, Z., Lu, G., Zhang, X., & Yang, Y. (2019). Palliative care and hospice care: A conceptual analysis, key elements, and practical applications [安宁疗护与缓和医疗:相关概念辨析、关键要素及实践应用], Medicine and Philosophy [医学与哲学], 40(2), 37–42.
Kaufman, S. R. (2006). And a time to die: How American hospitals shape the end of life. University of Chicago Press.
Kavalieratos, D., Corbelli, J., Zhang, D., Dionne-Odom, J. N., Ernecoff, N. C., Hanmer, J., ... & Schenker, Y. (2016). Association between palliative care and patient and caregiver outcomes: A systematic review and meta-analysis. JAMA, 316(20), 2104–2114.
Kelley, A. S., & Morrison, R. S. (2015). Palliative care for the seriously ill. The New England Journal of Medicine, 373(8), 747–755.
Kutner, J. S. (2010). An 86-year-old woman with cardiac cachexia contemplating the end of her life: Review of hospice care. JAMA, 303(4), 349–356.
Lamers, W. M. (2002). Defining hospice and palliative care: Some further thoughts. Journal of Pain & Palliative Care Pharmacotherapy, 16(3), 65–71.
Liu, X., & Zhao, Q. (2022). Age, time nearing death, and medical expenses for the elderly—Validation of the "red herring" hypothesis [年龄、临近死亡时间和老年人医疗费用——关于“红鲱鱼”假说的验证], Population and Development [人口与发展], 28(1), 2–15.
Miller, S. C., Gozalo, P., & Mor, V. (2001). Hospice enrollment and hospitalization of dying nursing home patients. The American Journal of Medicine, 111(1), 38–44.
Miller, S. C., & Mor, V. N. T. (2002). The role of hospice care in the nursing home setting. Journal of Palliative Medicine, 5(2), 271–277.
Mou, J. (2007). Inequality in the utilization of medical resources in China [我国居民医疗资源利用状况的不平等], Journal of the Graduate School of the Chinese Academy of Social Sciences [中国社会科学院研究生院学报], (5), 20–27.
Murtagh, F. E. M., Bausewein, C., Verne, J., Groeneveld, E. I., Kaloki, Y. E., & Higginson, I. J. (2014). How many people need palliative care? A study developing and comparing methods for population-based estimates. Palliative Medicine, 28(1), 49–58.
Pace, B., Burke, A. E., & Glass, R. M. (2006). JAMA patient page. Hospice care. JAMA, 295(6), 712.
Pellegrino, E. D., & Thomasma, D. C. (1993). The virtues in medical practice. Oxford University Press.
Philipson, T. J., Becker, G., Goldman, D., & Murphy, K. M. (2010). Terminal care and the value of life near its end (NBER Working Paper No. 15649). National Bureau of Economic Research.
Plonk, W. M., & Arnold, R. M. (2005). Terminal care: The last weeks of life. Journal of Palliative Medicine, 8(5), 1042–1054.
Quill, T. E. (2000). Initiating end-of-life discussions with seriously ill patients: Addressing the "elephant in the room". JAMA, 284(19), 2502–2507.
Radbruch, L., De Lima, L., Knaul, F., Wenk, R., Ali, Z., Bhatnaghar, S., ... & Pastrana, T. (2020). Redefining palliative care—A new consensus-based definition. Journal of Pain and Symptom Management, 60(4), 754–764.
Roth, A. R., & Canedo, A. R. (2019). Introduction to hospice and palliative care. Primary Care, 46(3), 287–302.
Scitovsky, A. A. (1994). "The high cost of dying" revisited. The Milbank Quarterly, 72(4), 561.
Sen, A. (1999). Development as freedom. Alfred Knopf.
Sprung, C. L., Ricou, B., Hartog, C. S., Maia, P., Mentzelopoulos, S. D., Weiss, M., ... & Avidan, A. (2019). Changes in end-of-life practices in European intensive care units from 1999 to 2016. JAMA, 322(17), 1692–1704.
Stolick, M. (2002). Overcoming the tendency to lie to dying patients. The American Journal of Hospice & Palliative Care, 19(1), 29–34.
Sun, H. (2024). The legislative foundation and regulatory path of palliative care [安宁疗护的立法基础与规制进路], Journal of Nanjing Medical University (Social Science Edition) [南京医科大学学报(社会科学版)], 24(2), 155–161.
True, G., Phipps, E. J., Braitman, L. E., Harralson, T., Harris, D., & Tester, W. (2005). Treatment preferences and advance care planning at end of life: The role of ethnicity and spiritual coping in cancer patients. Annals of Behavioral Medicine, 30(2), 174–179.
Virdun, C., Luckett, T., Davidson, P. M., & Phillips, J. (2015). Dying in the hospital setting: A systematic review of quantitative studies identifying the elements of end-of-life care that patients and their families rank as being most important. Palliative Medicine, 29(9), 774–796.
Wright, A. A., Zhang, B., Ray, A., Mack, J. W., Trice, E., Balboni, T., ... & Prigerson, H. G. (2008). Associations between end-of-life discussions, patient mental health, medical care near death, and caregiver bereavement adjustment. JAMA, 300(14), 1665–1673.
Wu, Y., Feng, D., Xu, D., Zhu, Y., & Yang, L. (2020). Evolution and development of palliative care policies in China [中国安宁疗护服务政策演变与发展], Medicine and Philosophy [医学与哲学], 41(14), 23–27.
Yang, J. (2007). Theoretical reflections on population transition and elderly poverty issues [人口转变与老年贫困问题的理论思考], China Population Science [中国人口科学], (5), 88–94, 96.
Yu, P. (2017). Geriatrics [老年医学] (2nd ed.). People's Medical Publishing House [人民卫生出版社].
Zeppetella, G. (2017). Palliative care in clinical practice [临床实践中的缓和医疗]. China Union Medical College Press [中国协和医科大学出版社].
Zhan, J. (2004). Study on the need for complete care for elderly people nearing end-of-life [高龄老人临终前完全需要他人照料状况研究]. China Population Science [中国人口科学], (S1).
Zhang, B., Wright, A. A., Huskamp, H. A., Nilsson, M. E., Maciejewski, M. L., Earle, C. C., ... & Prigerson, H. G. (2009). Health care costs in the last week of life: Associations with end-of-life conversations. Archives of Internal Medicine, 169(5), 480.
Zhang, Y., Liu, J., & Tian, Y. (2023). Medical expenses, end-of-life suffering, and the necessity of palliative care systems—A quantitative analysis based on micro data [医疗支出、临终痛苦与和缓医疗制度必要性研究——基于微观数据的定量分析], Insurance Research [保险研究], (4), 62–74.
Zhang, Y., & Yan, W. (2024). The impact of time nearing death on medical expenses—Verification of the "red herring" hypothesis based on big data [临近死亡时间对医疗支出的影响——基于大数据验证“红鲱鱼”假说].
Zeng, Y., Chen, H., & Wang, Z. (2012). Trends in the changing costs of elderly family care demand in the first half of the 21st century [世纪上半叶老年家庭照料需求成本变动趋势分析]. Economic Research [经济研究], 47(10), 134–149.
